Mathia Lee ~ Plans and Preoccupations

Say YES to AIDS treatment subsidies!

Posted in Life and Death, Sexuality, Social Commentary by mathialee on December 2, 2008

In Singapore, AIDs patients do not get ANY subsidies for their treatment at all. Insurance policies exclude HIV infections and its symptoms; those that provide some coverage exclude HIV infection via sexual means.

Why don’t AIDS patients get subsidies?

The usual excuse is that HIV infected people have brought it upon themselves by engaging in immoral / risky sexual behavior, and hence they and they alone should pay for the consequences.

This continues to be an excuse, even though medical subsidies are still given to smokers who contract lung cancer, to junk food lovers who develop heart conditions , to reckless drivers who crash in their cars.

This continues to be an excuse, even though most women get HIV from being faithful to their husbands, even though all children get HIV from simply being born.

This continues to be an excuse, even though the cost of subsidizing treatment for women and children is $5000/ yr only (AFA estimates). The cost of providing a 50% subsidy to all HIV patients is $ 9.4 m / year only, 0.5% of our $1.8b public expenditure. In 2008, the government increased HIV funding for manpower and prevention programmes, but not for medical subsidies.

 

What is happening to AIDS patients in Singapore, without subsidies?

HIV infected people die within 5 – 10yrs of infection without medication, but can live for another 40 years – healthily, and without infecting others if they practice safe sex – with the necessary drugs. How many of you reading this are confident of living another 40 years?

A HIV person on the World Health Organization’s (WHO) recommended therapy has to pay about $1650 a month here. Because of the high price, compounded by the fact that HIV patients are often jobless due to job discriminations and unfair dismissal, patients here often cannot afford their drugs.

For most patients, they take their medications whenever they have the money to buy the medicines. When their money runs out, they stop their medication, until they can find money again. But HIV drugs are not like painkillers, where you just have to bear with the pain when you stop the drugs. For HIV drugs, missing just 10% of the needed doses, can make the drugs useless, and 2nd-line, costlier drugs would be needed to help the patient.

When Mr Goh Chok Tong was prime minister, he promised that nobody in Singapore would be denied health care because they could not afford it. This promise has been kept to almost all Singaporeans. Unless you are a HIV patient. Medifund, which Mr Goh started as the last safety net for the poorest people who could not afford medication, does not fund HIV drugs. In this rich 1st world nation, people are dying of AIDS, because they cannot afford their medicines.

 

Why are AIDS drugs so expensive?

Drugs for treating HIV are expensive. Because Singapore is a first world nation, drug companies sell drugs here at first world prices. For most other illnesses for which government subsidies are provided, such pricing is fair because the cost is spread amongst all the tax payers, and the cost is affordable for a wealthy nation like ours is. But drug companies cannot make an exception with HIV medication simply because the government refuses to subsidize; drug companies are neither charities nor do they have the responsibility of taking care of a country’s citizens. And unlike diseases like diabetes where there is a choice of cheap basic drugs or expensive sophisticated drugs, all the drugs used in HIV treatment is incredibly expensive.

 

Our “3rd World” neighbors are subsidizing Singaporeans

In Malaysia, the first line treatment for HIV is provided free, and often Singaporeans have to depend on Malaysia – is it fair for Malaysian taxpayers to be subsidizing Singaporeans? In Thailand, the government backs the production of generics which are just as effective as the non-generics, but cost 2 – 10 times less. Hence Singaporeans have to depend on the Thais as well, but custom laws allows them to bring in only 3 months supply at a time, and hence patients, despite their ill health, their work schedule and their depleting funds, have to make this 3 monthly trip to Thailand to survive.  In Taiwan, the basic HIV treatment is free, and this has helped reduce treatment because the infectivity of HIV patients on drugs is decreased. The WHO recommends that countries put HIV drugs on their list of subsidized drugs, but Singapore dies not heed this recommendation.

The generic drugs being produced however, are the older generation of drugs which have many undesirable side effects. The new , better drugs, with less side effects,  allows the patient to function more normally, but because of World Trade Organisation laws, countries like Thailand and India are not allowed to produce generics.

 

Hope for Singapore

Today, I read with great hope that Singapore’s Communicable Disease Centre (CDC) said it is confident all HIV patients in Singapore will have access to anti-HIV drugs by 2010. (http://www.channelnewsasia.com/stories/singaporelocalnews/view/393484/1/.html ) At the recent 6th Singapore AIDS conference, there were many doctors from the CDC that spoke up strongly in support of their patients – no longer did they want to prescribe drugs that their patients would never buy because there was no money. No longer did they want to treat patients who would die because there was no money. Dr Arlene Chua reported during the conference, that 50% of the doctors here support enhanced policies to contain HIV, but another 30% choose to remain silent because they believe doctors shouldn’t meddle in politics. Today I read with great hope that perhaps more doctors have realized that to save patients, great medications are not enough; great policies are needed too, and these doctors have decided to take a stand.

And YOU readers, can do your part, by simply voicing out your support at this ChannelNewsAsia poll here  http://www.channelnewsasia.com/polls/commentform.php?id=168

 

Today I also read with great hope in the Today paper, that WorldVision, which went in rescue of the Myanmar and Sichuan victims, have come to the rescue of AIDS victims here in Singapore. http://www.worldvision.org.sg/st_worldaidsday.php

They are providing educational funds (One Life Fund)  to the children who are suffering from HIV, or have parents suffering from HIV. Because most of the family’s income goes towards the expensive medication, and because HIV parents tend to lose their jobs, these children often forfeit their education. World Vision is making sure the children will never have to choose between school or their parent’s lives.

And YOU readers, can do your part too. Buy a M.A.C VIVA GLAM lipstick and support a child living with HIV in Singapore through school.

Visit the M.A.C counter at Tangs Orchard on December 6, 2008 to purchase a VIVA GLAM lipstick. All proceeds from the sale will be donated to the M.A.C AIDS Fund to help those suffering from HIV and AIDS in Singapore. (M A C AIDS Fund is raised for World Vision’s One Life Fund)

 

And most heartening of all, I read with great JOY and HOPE:

The public CNA poll results: Besides offering voluntary tests at public hospitals, should HIV-positive patients get subsidised treatment?

A resounding 87% say YES!!!!

In case the CNA  poll is close, please join this Facebook group: YES to HIV/AIDS treatment subsidies

http://www.facebook.com/profile.php?id=523405834&ref=name#/group.php?gid=47441588351

 

 

23 Responses

Subscribe to comments with RSS.

  1. mathialee said, on December 2, 2008 at 10:39 pm

    I got my information here from presentations given at the 6th Singapore AIDS Conference. If you think there are mistakes / if i’ve misheard or misunderstood something, please feel free to feedback it here in the comments. Thanks!

  2. [...] Read rest of article here [...]

  3. Daniel Ling said, on December 3, 2008 at 10:57 am

    Mathia, some things to clarify.

    “This continues to be an excuse, even though medical subsidies are still given to smokers who contract lung cancer, to junk food lovers who develop heart conditions , to reckless drivers who crash in their cars.”

    These subsidies do u mean the normal medical treatment subsidies or do u mean something else?

    “but because of World Trade Organisation laws, countries like Thailand and India are not allowed to produce generics. ”

    Wat’s the reason for this?

    Once again, great read Mathia. =D

  4. [...] HIV:AIDS Awareness – Mathia Lee: Say YES to AIDS treatment subsidies! – Everyday’s Life in a Snapshot: aren’t AIDS sufferers Singaporeans too? – harmless? [...]

  5. Desmond said, on December 3, 2008 at 1:58 pm

    Very good article. Why is it that some ministers can argue that increasing our minister’s pay accounts for only 0.5% of our GDP (for their new 50% increase) and yet none of them makes a peep when it comes to subsidising HIV medication?

  6. mathialee said, on December 3, 2008 at 4:44 pm

    Hey Daniel and Desmond,

    Thanks for your feedback and comments!

    Daniel:

    REGARDING SUBSIDIES:

    Yep I do mean the normal / standard subsidies. If you’re Singaporean, and you go to a public hospital, your bill will most probably reflect the actual cost (which is huge) and the amount of subsidy given (which is usually huge too (good job here to the policy makers!) ) .

    And if I’m not wrong (someone correct me if I am), when you go to public polyclinics here, the cost per medicine is usually around $2 – 5 right??? Trust me, that’s highly highly subsidised, and rightly so.

    http://www.moh.gov.sg/mohcorp/uploadedFiles/Means-Testing/Healthcare%20We%20Can%20All%20Afford.pdf

    http://www.moh.gov.sg/mohcorp/hcfinancing.aspx?id=104

    Formulary of standard drugs /Ministry of Health, Singapore.
    http://snb.nl.sg/holding/itemholding.aspx?bid=7476637

    REGARDING GENERIC DRUGS:

    Drug companies spend billions of dollars researching for and inventing new drugs. For every 10,000 (http://www.netsci.org/scgi-bin/Courseware/projector.pl?Course_num=course1&Filename=slide06.html) drugs that they spend money researching on, probably only 1 will be successful/safe enough to put on the market. So the price that they sell this 1 drug has to cover the cost of the 9999 failures, not just the cost of that 1 drug. For generic drugs, you just need to sell the drugs at a price that recovers the cost of that 1 drug, so it’s much cheaper. But if everyone buys the generics, then the drug companies go bust. And there will be no incentive for drug companies to do research anymore, if they cannot cover the cost of the 9999 failures. That’s why trade laws protect them, from “piracy” .

    Remember Thomas Edison’s lightbulb invention qoute : I have not failed. I’ve just found 10,000 ways that won’t work.

    Desmond: *shake my head and shrug in utter puzzlement*

  7. Really? said, on December 4, 2008 at 2:55 am

    Just my 2 cents. As the author have described that the subsidy of AIDS treatment is only .5% of the entire public health expenditure. But what’s the percentage of Singapore population that have AIDS? 5,000 out of 5 million? That would be a disproportionate use of resources for a small affected population.

    Taxes in Singapore are one of the lowest in the regions compared to Taiwan, Malaysia and Thailand. Unless tax rates are raised, it’s not possible to subsidize every patient with major illnesses. It would be better to start a charity organization to raise funds and subsidize treatment for the HIV patients. Otherwise it would make sense for the SG govt to maximize their tax revenues by promoting education on HIV and reduce incidence rate.

    Of course, it would be great if treatments are subsidized but there’s only so much the govt can help with their limited resources.

  8. [...] Original blog link [...]

  9. [...] fellow blogger that very eloquently stated out everything I have to say. The blogger summarizes why Singapore Government should subsidize Aids treatment in Singapore, and not deny people the right to live because they have no [...]

  10. mathialee said, on December 4, 2008 at 10:52 am

    Hi Really?
    Thanks for your comments; I really love hearing your views even tho’ I may not stand with you…(yet?) Just 3 questions I hope you can help answer.

    1. WHERE DO YOU DRAW THE LINE?
    You said that “That would be a disproportionate use of resources for a small affected population.” So what proportion of the population has to be afflicted by an illness before we start subsidising? Where and HOW do you decide on this line? SARS affected only less than 100 people. Look at the resources poured in. Was that due to the fast-spreading nature of SARS? AIDS is also an infectious disease which spreads. The numbers looks small, but with half the cases only being detected a few years after infection, and with the rising rates if infection, you can be sure there are many many more undetected HIV cases.

    According to MOH statistics the No.10 killer in Singapore “Nephritis, Nephrotic Syndrome & Nephrosis” (layman language : KIDNEY FAILURE) had only 3500 deaths in Singapore in 2007. Shall we also stop all government treatment subsidies (through grants to NKF, through direct medication subsidies, through Medishield coverage) for Kidney patients? Or should the government have the apply the same subsidy model to HIV treatment?
    (http://www.moh.gov.sg/mohcorp/statistics.aspx?id=5526)

    2. WHERE IS JUSTICE?
    AIDS patients have been contributing to society, same as everyone else, through taxes, through their work. Is it justice if some people have their treatments (eg smokers for lung cancer) subsidised, but not others? How do you decide who to subsidise, if justice is your principle criteria? 14,000 women a year abort their babies. They get high subsidies for their abortions, even tho’ it was their “mistake” having unsafe sex, and no one makes a sound about it. Why should 5000 people pay the price of death for the same mistake of unsafe sex? Remembr, drugs can keep them healthy for another 40 yrs. By denying them affordable drugs, you are killing them 40 yrs earlier than necessary.

    By relegating the ENTIRE responsibility to Charities (charities are great, as a support structure, as with NKF), you are essentially saying that treatment for HIV patients is a form of underserved mercy to them, because it is the governments role to provide what citizens DESERVE (ie. human rights). Do HIV patients not deserve the treatment they need? Why?

    By the way, each year there are only 2 – 4 babies getting HIV from their mother (http://www.moh.gov.sg/mohcorp/statistics.aspx?id=246), that’s like $5000 a month to provide full subsidies for these babies, so let’s not even talk about having to raise taxes yah?

    3. WOULD IT ALWAYS BE SUCH A SMALL PORTION, 5000 out of 5million?
    Based on the current rising trends (http://www.moh.gov.sg/mohcorp/statistics.aspx?id=246)
    the answer is a definate NO. When a family has to spend all its income on treatment because no subsidy is provided, everyone, including their children who need money for schoolm gets affected. How many people must be infected before we start providing treatment subsidies?

    One reason that people do not test for HIV (or opting out of the auto-testing now) , is because there is absolutely no incentive for them to. If you are negative, then no point testing. If you are positive, you will lose your job, you screw up your family, you have to pay for treatments $1000 a month, no one helps you, you die. Why should anyone want to test? For most other diseases eg cancer screening, heart disease screening, you test because you CAN get treated (direct subsidies or Medishield coverage) when you test positive. Not so for HIV.

    So with the high risk people not wanting tests, would the infection rates go up or down?

    Yes we might have a law that convicts people of transmitting HIV, even unknowingly. But this law is REACTIVE, not PREVENTIVE. And seriously, when the death sentence that is AIDS does not even deter people, what makes you think they will be detered by a jail sentence?

  11. [...] Say YES to AIDS treatment subsidies! [...]

  12. [...] HIV:AIDS Awareness – Mathia Lee: Say YES to AIDS treatment subsidies! – Everyday’s Life in a Snapshot: aren’t AIDS sufferers Singaporeans too? – harmless? [...]

  13. Blair Hunt said, on December 9, 2008 at 12:36 am

    A great supporter of World Vision is AIDtoCHILDREN.com.

    AIDtoCHILDREN.com is a dual-purpose site for building an English vocabulary and raising money for under privileged children in the most impoverished places around the world.

    Check it out at http://www.aidtochildren.com

  14. latest treatment for aids hiv said, on December 12, 2008 at 11:21 pm

    Dear friend,
    i am impressed by your article,
    keep it up ,
    keep writing for the Humanitarian cause

  15. mathialee said, on December 13, 2008 at 3:36 am

    Thanks! I will! And yours ( http://bvwaghmare.blogspot.com ) is an excellent site for HIV /AIDS scientific information. Am truly honored by you =)

  16. Mohammed Ishak said, on December 15, 2008 at 8:23 pm

    Great work on the article!!

  17. mathialee said, on December 15, 2008 at 8:37 pm

    thanks!

  18. Deborah said, on December 19, 2008 at 9:48 am

    I recently came across your blog and have been reading along. I thought I would leave my first comment. I don’t know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.

    Deborah

    http://termlifeinsurance2.com

  19. Treatment for AIDS said, on December 19, 2008 at 4:43 pm

    Thank you Mathia Lee ,
    I am too Honoured by you.
    keep in touch

  20. rai said, on December 22, 2008 at 7:31 pm

    Well this is a nice Blog on most important facts. I am happy to read this. But I am looking more and more info. Please add some thing more. I shall link from my blogs to this blog to day itself.
    Last week I have found a nice informative guide on HIV from following URL http://www.hiv-info.org/health-news.php
    This site says – HIV should Cure Through herbal medicines and Holistic Treatment, It’s a latest treatment it can kill HIV virus. This site gives you all the information about HIV. Guide claims that HIV viruses can’t be killed but they can be ousted out of the body cells using bio magnetic repulsion or something written. I dreamt of a HIV free world after reading this guide.
    Hope to read more from you people soon.
    Wish you all a nice and fantastic Day for you

  21. mathialee said, on December 26, 2008 at 12:06 am

    hmmmm. …. i have serious reservations about such alternative medicines. I’ll advise sticking to the tried and tested drug cocktails

  22. CM said, on March 12, 2009 at 5:36 pm

    This might be controversial… May invite flaming… But who cares.

    Before we expect the State/Politicians/Society-In-General to consider AIDS treatment subsidies, fair treatment (all aspects) for HIV patients, and whatever else you can think of, try answering these questions:
    1) What is the projection/forecast on HIV cases worldwide? Going up? Or going down? What is the rate?
    2) How effective are current measures to reduce spread of HIV?
    3) Can we eliminate HIV in 1 or 2 generations with the current measures?
    4) Do you have more effective measures?

    When you have answers, form a group, do publicity and petition, push the case up to Parliament – It will be accepted. Everybody will accept it. Naturally, there will be treatment subsidies as well.
    BTW, don’t ask me, nobody likes my draconian solution (posted somewhere in this blog).

  23. CM said, on March 13, 2009 at 7:57 pm

    Going to add more stuff… Hahaha… Well, reality bites.

    Assume providing 50% subsidy to all HIV patients in Singapore is $9.4M per year ONLY:
    If……
    -> The lower income peoples ask for this $9.4M per year to help them.
    -> The poor old peoples asking for this $9.4M per year to help them with nursing care.
    -> Etc. Etc. Etc.

    Who do you give that $9.4M per year?

    And if the projection on HIV cases is going up (and there is no effective solution to bring it down), that means more money will be required per year.

    So, who do you give that money to after considering priority for all other issues?

    The public CNA poll represents a pathetic proportion of the population. And, by focusing on a single issue without acknowledging other priorities that require funding, it is easy to say YES to subsidies.


Leave a Reply